Pseudonymization of patient identifiers for trans-lational research
The usage of clinical patient data for research im-poses risks concerning privacy and informational self-determination of the patient. The gold standard for safeguarding patients' personal rights is the anonymization of the clinical data. However, next-generation-sequencing technologies and various other methods impose ethical constraints that pro-hibit anonymization of patient samples. Individual results from genetic and genomic research should be offered to study participants in a timely manner. A new method for pseudonymizing patient identifi-ers is presented in which the pseudonymization service provider is unable to derive the patient iden-tifier from the pseudonym, but rather this ability is assigned to an authorized third party (Ombuds-man).
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