Members of The Nottingham Stroke Consumer Group don’t hold back when it comes to offering academics their opinions. In fact they are better qualified than most to give it. They may come from different backgrounds — business, university lecturing, the civil service, nursing, manufacturing and IT — but they have one thing in common, they have all suffered a stroke.
Set up three years ago the group meets four times a year with senior academics and researchers from The University of Nottingham to discuss and evaluate the latest research and go through grant applications for funding in fine detail. Its aim is to improve and develop treatment for stroke victims by focusing research more closely on the needs of stroke victims.
After a stroke eight years ago Nottinghamshire businessman Ossie Newell spent seven weeks in hospital. He went home in a wheelchair; he couldn’t walk, write or dress himself. Looking back he describes his recovery as miraculous. He is now secretary and treasurer of The Nottingham Stroke Consumer Group and is currently organising a string of events across Nottinghamshire this year to raise awareness of what they do. He said: “We have currently an estimated 16,000 to 19,000 people living with the after effects of stroke in Nottinghamshire and I want them all to know what the group does and what it can achieve by being there to influence stroke research and therefore ultimately the treatment and rehabilitation after stroke.”
Stroke is the commonest cause of death after cancer and heart disease. 130,000 people suffer a stroke every year. A third will die; a third will make a full recovery; and third will suffer serious disability. No age group is immune — an average of six to seven children under 16 suffers a stroke each week.
Experts from The University of Nottingham are leading the way in stroke rehabilitation research. Marion Walker, a Professor in Stroke Rehabilitation at the Institute of Neuroscience, and Associate Director of the UK Stroke Research Network, says it is important to get patients fully involved as partners in stroke research and to raise the importance of participating in research to the wider public. She said: “Nottingham has a long track record of conducting high quality research that has been influential in setting clinical guidelines both in the UK and abroad. It is important that stroke patients get involved in all aspects of the stroke research process. Their contribution is invaluable. In Nottingham we are fully committed to having research survivors as partners in the development and steering of future research proposals. The Nottingham Stroke Research Consumer Group was one of the first stroke groups to establish this joint working initiative and has been the role model for the development of many other groups across the UK. The Nottingham group also have an active working relationship with the UK Stroke Research Network and provide advice on how to raise awareness of stroke and the importance of taking part in research to the wider lay public.
Other members of the group include Jenny Darby, a retired lecturer at Loughborough University. After her stroke she was allowed to carry on her work despite being unable to speak a word for the first six months of her recovery. Since her stroke she has completed a PhD.
Malcolm Jarvis was a manufacturing consultant and travelled the world. He had just published a book on teaching and lecturing in work study when he suffered a stroke. Since then he has written a book about Oxton Cricket Club where he used to be a playing member.
Norma Fenton was a civil servant in Whitehall.
Charles Russell was a charge nurse at the Queen’s Medical Centre.
Phil Noskeau worked for the Open University and was an IT trainer. He has developed the @astroke web site for the sister organisation of this group and has just been nominated by the group for a Stroke Association ‘Life After Stroke Award’.
Emma Thorne | alfa
Laser activated gold pyramids could deliver drugs, DNA into cells without harm
24.03.2017 | Harvard John A. Paulson School of Engineering and Applied Sciences
What does congenital Zika syndrome look like?
24.03.2017 | University of California - San Diego
Astronomers from Bonn and Tautenburg in Thuringia (Germany) used the 100-m radio telescope at Effelsberg to observe several galaxy clusters. At the edges of these large accumulations of dark matter, stellar systems (galaxies), hot gas, and charged particles, they found magnetic fields that are exceptionally ordered over distances of many million light years. This makes them the most extended magnetic fields in the universe known so far.
The results will be published on March 22 in the journal „Astronomy & Astrophysics“.
Galaxy clusters are the largest gravitationally bound structures in the universe. With a typical extent of about 10 million light years, i.e. 100 times the...
Researchers at the Goethe University Frankfurt, together with partners from the University of Tübingen in Germany and Queen Mary University as well as Francis Crick Institute from London (UK) have developed a novel technology to decipher the secret ubiquitin code.
Ubiquitin is a small protein that can be linked to other cellular proteins, thereby controlling and modulating their functions. The attachment occurs in many...
In the eternal search for next generation high-efficiency solar cells and LEDs, scientists at Los Alamos National Laboratory and their partners are creating...
Silicon nanosheets are thin, two-dimensional layers with exceptional optoelectronic properties very similar to those of graphene. Albeit, the nanosheets are less stable. Now researchers at the Technical University of Munich (TUM) have, for the first time ever, produced a composite material combining silicon nanosheets and a polymer that is both UV-resistant and easy to process. This brings the scientists a significant step closer to industrial applications like flexible displays and photosensors.
Silicon nanosheets are thin, two-dimensional layers with exceptional optoelectronic properties very similar to those of graphene. Albeit, the nanosheets are...
Enzymes behave differently in a test tube compared with the molecular scrum of a living cell. Chemists from the University of Basel have now been able to simulate these confined natural conditions in artificial vesicles for the first time. As reported in the academic journal Small, the results are offering better insight into the development of nanoreactors and artificial organelles.
Enzymes behave differently in a test tube compared with the molecular scrum of a living cell. Chemists from the University of Basel have now been able to...
20.03.2017 | Event News
14.03.2017 | Event News
07.03.2017 | Event News
24.03.2017 | Materials Sciences
24.03.2017 | Physics and Astronomy
24.03.2017 | Physics and Astronomy