The most common cause of sudden cardiac death in children and adolescents is the heart muscle disease hypertrophic cardiomyopathy. The condition is hereditary, and if one family member is affected the Swedish National Board of Health and Welfare recommends that the whole family is screened. This can lead to major upheavals in family members’ lives: people who see themselves as healthy can suddenly get a diagnosis that necessitates big lifestyle changes and sometimes even lifelong medical treatment.
“The lifestyle changes, on the other hand, have a greater negative impact, not least for older children and adolescents who are already doing sport and now have to avoid unsuitable sporting activities.”
“Younger children can be guided by their parents towards other leisure activities which they can pursue during their youth without running any risks,” says Bratt.Not informed of the risk
“Our most important conclusion is that newly diagnosed children and adolescents given the right support and information can maintain their quality of life and look confidently to the future,” she says. “I hope that my thesis will spur further improvements in the way these patients are looked after.”Good physical performance
The thesis “Screening for Hypertrophic Cardiomyopathy in Asymptomatic Children and Adolescents. Psychosocial consequences and impact on quality of life and physical activity” was successfully defended on 28 October.HYPERTROPHIC CARDIOMYOPATHY AND SUDDEN CARDIAC DEATH
Helena Aaberg | idw
Live probiotics can re-balance the gut microbiome and modify immune system response
20.11.2018 | Symprove
Purdue cancer identity technology makes it easier to find a tumor's 'address'
16.11.2018 | Purdue University
Max Planck researchers revel the nano-structure of molecular trains and the reason for smooth transport in cellular antennas.
Moving around, sensing the extracellular environment, and signaling to other cells are important for a cell to function properly. Responsible for those tasks...
Researchers at the University of New Hampshire have captured a difficult-to-view singular event involving "magnetic reconnection"--the process by which sparse particles and energy around Earth collide producing a quick but mighty explosion--in the Earth's magnetotail, the magnetic environment that trails behind the planet.
Magnetic reconnection has remained a bit of a mystery to scientists. They know it exists and have documented the effects that the energy explosions can...
Biochips have been developed at TU Wien (Vienna), on which tissue can be produced and examined. This allows supplying the tissue with different substances in a very controlled way.
Cultivating human cells in the Petri dish is not a big challenge today. Producing artificial tissue, however, permeated by fine blood vessels, is a much more...
Faster and secure data communication: This is the goal of a new joint project involving physicists from the University of Würzburg. The German Federal Ministry of Education and Research funds the project with 14.8 million euro.
In our digital world data security and secure communication are becoming more and more important. Quantum communication is a promising approach to achieve...
On Saturday, 10 November 2018, the research icebreaker Polarstern will leave its homeport of Bremerhaven, bound for Cape Town, South Africa.
19.11.2018 | Event News
09.11.2018 | Event News
06.11.2018 | Event News
20.11.2018 | Life Sciences
20.11.2018 | Life Sciences
20.11.2018 | Physics and Astronomy