Genetic testing identifies illnesses that might be linked to our genes. It can help recognise hereditary diseases, tailor cures to an individual’s genetic make-up and develop new drugs. But its use also has important ethical implications.
At a conference on “Human genetic testing: what implications?” organised by European Research Commissioner Philippe Busquin in Brussels today and tomorrow, a High Level expert group will present a report and 25 recommendations on how genetic testing can be used in a responsible and ethical way.
The Expert Group, chaired by Mrs Eryl McNally, Member of the European Parliament, includes scientists and representatives from different academic backgrounds (law, philosophy, ethics and medicine), non-governmental organisations (such as patient organisations) and the pharmaceutical industry (Bayer, Genzyme, GSK, Novartis, Roche). Recommendations focus on the quality of genetic tests, the need for genetic screening of rare and serious diseases, ethnicity, the protection and confidentiality of genetic information and the economic and social consequences of genetic testing especially its impact on health care systems.
Wappelhorst, Michael H | alfa
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