Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

Genetic Biobanks: Deposits, Withdrawals, and Consumer Protection

21.11.2008
Panelists will examine the proliferation of genetic research databases to study genetic contributions to disease, the policies governing biobanks, and the conditions under which people are willing to contribute genetic information to such biobanks.

Biobanks, and studies based on them, have swiftly proliferated in recent years. These repositories of information and/or biological samples from many patients have enabled researchers to unlock a host of associations between genes and diseases.

But even as they contribute to 21st-century science, many of the rules that govern biobanks are survivors of a pre-genomic era of collecting and storing tissue and blood samples, and vary widely between institutions. As ideas about de-identification, consent, and return of results evolve, is it time to re-think our standards for biobanks?

The Genetics and Public Policy Center will consider this question at its next Genetic Perspectives on Policy Seminar (GenePOPS), to be held Tuesday, December 9 at 2:00 p.m. EST. The seminar, "Genetic Biobanks: Deposits, Withdrawals, and Consumer Protection," will take place at the National Press Club in Washington, DC. Anyone may attend this free seminar, but we encourage advance registration at http://www.dnapolicy.org/event.registration.php?event_id=34.

Panelists will examine the proliferation of genetic research databases to study genetic contributions to disease, the policies governing biobanks, and the conditions under which people are willing to contribute genetic information to such biobanks. The program will address the wide range of biobanks currently in operation, their uses, and their access policies for researchers and the non-research community, including law enforcement. Panelists will also discuss the logistics of making and keeping genetic data in biobanks private, the extent to which research results can and should be returned to participants in the studies, and other factors that influence public participation in genetic research.

We hope you will join us for this timely event.

Moderator
Kathy Hudson, director, Genetics and Public Policy Center, Johns Hopkins University

Panel

Isaac Kohane, director of the Children's Hospital Informatics Program and Henderson Associate Professor of Pediatrics and Health Sciences and Technology at Harvard Medical School

Teri Manolio, senior advisor to the director, National Human Genome Research Institute

Joan Scott, deputy director, Genetics and Public Policy Center

The speakers will be followed by panel discussion, reporter questions, and audience Q & A.

Rick Borchelt | Newswise Science News
Further information:
http://www.jhu.edu

Further reports about: Biobanks Consumer Genetic Protection Withdrawals blood sample genetic research

All articles from Life Sciences >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: Patented nanostructure for solar cells: Rough optics, smooth surface

Thin-film solar cells made of crystalline silicon are inexpensive and achieve efficiencies of a good 14 percent. However, they could do even better if their shiny surfaces reflected less light. A team led by Prof. Christiane Becker from the Helmholtz-Zentrum Berlin (HZB) has now patented a sophisticated new solution to this problem.

"It is not enough simply to bring more light into the cell," says Christiane Becker. Such surface structures can even ultimately reduce the efficiency by...

Im Focus: New soft coral species discovered in Panama

A study in the journal Bulletin of Marine Science describes a new, blood-red species of octocoral found in Panama. The species in the genus Thesea was discovered in the threatened low-light reef environment on Hannibal Bank, 60 kilometers off mainland Pacific Panama, by researchers at the Smithsonian Tropical Research Institute in Panama (STRI) and the Centro de Investigación en Ciencias del Mar y Limnología (CIMAR) at the University of Costa Rica.

Scientists established the new species, Thesea dalioi, by comparing its physical traits, such as branch thickness and the bright red colony color, with the...

Im Focus: New devices based on rust could reduce excess heat in computers

Physicists explore long-distance information transmission in antiferromagnetic iron oxide

Scientists have succeeded in observing the first long-distance transfer of information in a magnetic group of materials known as antiferromagnets.

Im Focus: Finding Nemo's genes

An international team of researchers has mapped Nemo's genome

An international team of researchers has mapped Nemo's genome, providing the research community with an invaluable resource to decode the response of fish to...

Im Focus: Graphene enables clock rates in the terahertz range

Graphene is considered a promising candidate for the nanoelectronics of the future. In theory, it should allow clock rates up to a thousand times faster than today’s silicon-based electronics. Scientists from the Helmholtz Zentrum Dresden-Rossendorf (HZDR) and the University of Duisburg-Essen (UDE), in cooperation with the Max Planck Institute for Polymer Research (MPI-P), have now shown for the first time that graphene can actually convert electronic signals with frequencies in the gigahertz range – which correspond to today’s clock rates – extremely efficiently into signals with several times higher frequency. The researchers present their results in the scientific journal “Nature”.

Graphene – an ultrathin material consisting of a single layer of interlinked carbon atoms – is considered a promising candidate for the nanoelectronics of the...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

VideoLinks
Industry & Economy
Event News

One of the world’s most prominent strategic forums for global health held in Berlin in October 2018

03.09.2018 | Event News

4th Intelligent Materials - European Symposium on Intelligent Materials

27.08.2018 | Event News

LaserForum 2018 deals with 3D production of components

17.08.2018 | Event News

 
Latest News

Making better use of enzymes: a new research project at Jacobs University

19.09.2018 | Life Sciences

Light provides spin

19.09.2018 | Physics and Astronomy

Enjoying virtual-reality-entertainment without headache or motion sickness

19.09.2018 | Information Technology

VideoLinks
Science & Research
Overview of more VideoLinks >>>