This study, led by Arturo Álvarez Roldán, aspired to understand the implications of cancer for children diagnosed with the disease as well as their families, their experiences and worries, their relationship with the health system and their care needs during the disease treatment.
In order to carry out this study, the author interviewed 14 children staying at the Hospital Universitario Virgen Nieves or the Hospital Universitario San Cecilio de Granada and 22 mothers between June 2003 and October 2005, as well as their families during the three years previous to the study. This work combined participatory observation together with individual and group interviews with children and mothers in 14 clinic interviews.
Strong emotional impact
According to the results of her work, the researcher states that cancer diagnosis “causes a strong emotional impact” on the child, with negative feelings of uncertainty, fault, powerlessness and significant confusion”. From that moment on, the child, mother and, partly, the rest of the family life “revolve around the disease and treatment.”The most traumatic experiences are connected with the procedures, the treatment side effects and the isolation imposed by neutropenia, affecting the children not only physically and psychologically but also at a social and a school level.
In the work, carried out by the University of Granada, there appears a significant quantity of needs and improvement proposals, notably that of adapting the sanitary resources to the children and mothers’ specific needs and providing real, comprehensive attention to these patients. Nevertheless, the care received is well appreciated by those affected, who value the professional support.
Since the diagnosis of the disease, mothers express a change in their life values, “giving more importance to the day by day, to each moment, to the emotional aspects, and not to future or material things,” explains González Carrión.
The stigma goes on
“The data about successful treatments has not had a profound effect,” says the researcher, “as the diagnosis is still related to the idea of a death threat. The metaphors used when talking about cancer aroused suffering, which contributes to the perpetuation of the disease’s negative aspects. The stigma surrounding the disease, together with the delicate state of health in certain periods produces social isolation in the child and the family.”
The information obtained through the surveys of the doctoral thesis is of great interest for getting to know situations experienced by those affected, which means the possibility of naturally providing a more suitable assistance, adapted to their situation. The results of this research have been published in the magazine “NURE Investigation”.Reference
Antonio Marín Ruiz | alfa
Researchers simplify tiny structures' construction drip by drip
12.11.2018 | Princeton University, Engineering School
Mandibular movement monitoring may help improve oral sleep apnea devices
06.11.2018 | Elsevier
Faster and secure data communication: This is the goal of a new joint project involving physicists from the University of Würzburg. The German Federal Ministry of Education and Research funds the project with 14.8 million euro.
In our digital world data security and secure communication are becoming more and more important. Quantum communication is a promising approach to achieve...
On Saturday, 10 November 2018, the research icebreaker Polarstern will leave its homeport of Bremerhaven, bound for Cape Town, South Africa.
When choosing materials to make something, trade-offs need to be made between a host of properties, such as thickness, stiffness and weight. Depending on the application in question, finding just the right balance is the difference between success and failure
Now, a team of Penn Engineers has demonstrated a new material they call "nanocardboard," an ultrathin equivalent of corrugated paper cardboard. A square...
Physicists at ETH Zurich demonstrate how errors that occur during the manipulation of quantum system can be monitored and corrected on the fly
The field of quantum computation has seen tremendous progress in recent years. Bit by bit, quantum devices start to challenge conventional computers, at least...
Scientists developed specially coated nanometer-sized vehicles that can be actively moved through dense tissue like the vitreous of the eye. So far, the transport of nano-vehicles has only been demonstrated in model systems or biological fluids, but not in real tissue. The work was published in the journal Science Advances and constitutes one step further towards nanorobots becoming minimally-invasive tools for precisely delivering medicine to where it is needed.
Researchers of the “Micro, Nano and Molecular Systems” Lab at the Max Planck Institute for Intelligent Systems in Stuttgart, together with an international...
09.11.2018 | Event News
06.11.2018 | Event News
23.10.2018 | Event News
12.11.2018 | Life Sciences
12.11.2018 | Materials Sciences
12.11.2018 | Physics and Astronomy