Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

York academics to help shape access to medical database

06.12.2007
Social scientists at the University of York are to investigate public attitudes to the way medical information relating to hundreds of thousands of people is managed, particularly the rules governing third-party access to the data.

UK Biobank is one of the biggest and most detailed public health research initiatives of our time. It involves collecting blood and urine samples, plus health and 'lifestyle' information, from 500,000 individuals aged between 40 and 69 years, and relating it to subsequent disease, cause of death and other factors over a period of 30 years.

The purpose of the UK Biobank project is to set up a resource to support a range of research to improve the prevention, diagnosis and treatment of illnesses and the promotion of health throughout society.

But the use of the samples and data by third parties, such as the pharmaceutical industry and academic researchers, raises a range of ethical questions such as, what should the terms of access be and what mechanism should be adopted for sharing the benefits from research? The new study by a team from the Science and Technology Studies Unit (SATSU) in the University’s Department of Sociology will help to ensure that policies already established by UK Biobank remain fit for purpose in the future.

The study is funded by the UK Biobank Ethics and Governance Council (EGC), an independent monitoring body which is funded by the Wellcome Trust and the Medical Research Council.

Dr Graham Lewis, one of the SATSU research team, said: “The UK Biobank project raises numerous scientific, ethical and logistical issues and its success will depend on an appropriate and robust policy for third party access.”

Professor Graeme Laurie, Chair of the EGC said: “The role of the EGC is to advise and monitor UK Biobank in developing the best possible policies for managing the research resource. This important study will provide us with a better understanding of public attitudes towards access issues, and this will feed directly into our advice to UK Biobank.”

David Garner | alfa
Further information:
http://www.ukbiobank.ac.uk
http://www.egcukbiobank.org.uk/
http://www.york.ac.uk/admin/presspr/pressreleases/medicaldatabase.htm

More articles from Science Education:

nachricht Starting school boosts development
11.05.2017 | Max-Planck-Institut für Bildungsforschung

nachricht New Master’s programme: University of Kaiserslautern educates experts in quantum technology
15.03.2017 | Technische Universität Kaiserslautern

All articles from Science Education >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: Salmonella as a tumour medication

HZI researchers developed a bacterial strain that can be used in cancer therapy

Salmonellae are dangerous pathogens that enter the body via contaminated food and can cause severe infections. But these bacteria are also known to target...

Im Focus: Neutron star merger directly observed for the first time

University of Maryland researchers contribute to historic detection of gravitational waves and light created by event

On August 17, 2017, at 12:41:04 UTC, scientists made the first direct observation of a merger between two neutron stars--the dense, collapsed cores that remain...

Im Focus: Breaking: the first light from two neutron stars merging

Seven new papers describe the first-ever detection of light from a gravitational wave source. The event, caused by two neutron stars colliding and merging together, was dubbed GW170817 because it sent ripples through space-time that reached Earth on 2017 August 17. Around the world, hundreds of excited astronomers mobilized quickly and were able to observe the event using numerous telescopes, providing a wealth of new data.

Previous detections of gravitational waves have all involved the merger of two black holes, a feat that won the 2017 Nobel Prize in Physics earlier this month....

Im Focus: Smart sensors for efficient processes

Material defects in end products can quickly result in failures in many areas of industry, and have a massive impact on the safe use of their products. This is why, in the field of quality assurance, intelligent, nondestructive sensor systems play a key role. They allow testing components and parts in a rapid and cost-efficient manner without destroying the actual product or changing its surface. Experts from the Fraunhofer IZFP in Saarbrücken will be presenting two exhibits at the Blechexpo in Stuttgart from 7–10 November 2017 that allow fast, reliable, and automated characterization of materials and detection of defects (Hall 5, Booth 5306).

When quality testing uses time-consuming destructive test methods, it can result in enormous costs due to damaging or destroying the products. And given that...

Im Focus: Cold molecules on collision course

Using a new cooling technique MPQ scientists succeed at observing collisions in a dense beam of cold and slow dipolar molecules.

How do chemical reactions proceed at extremely low temperatures? The answer requires the investigation of molecular samples that are cold, dense, and slow at...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

Event News

3rd Symposium on Driving Simulation

23.10.2017 | Event News

ASEAN Member States discuss the future role of renewable energy

17.10.2017 | Event News

World Health Summit 2017: International experts set the course for the future of Global Health

10.10.2017 | Event News

 
Latest News

Microfluidics probe 'cholesterol' of the oil industry

23.10.2017 | Life Sciences

Gamma rays will reach beyond the limits of light

23.10.2017 | Physics and Astronomy

The end of pneumonia? New vaccine offers hope

23.10.2017 | Health and Medicine

VideoLinks
B2B-VideoLinks
More VideoLinks >>>