Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

York academics to help shape access to medical database

06.12.2007
Social scientists at the University of York are to investigate public attitudes to the way medical information relating to hundreds of thousands of people is managed, particularly the rules governing third-party access to the data.

UK Biobank is one of the biggest and most detailed public health research initiatives of our time. It involves collecting blood and urine samples, plus health and 'lifestyle' information, from 500,000 individuals aged between 40 and 69 years, and relating it to subsequent disease, cause of death and other factors over a period of 30 years.

The purpose of the UK Biobank project is to set up a resource to support a range of research to improve the prevention, diagnosis and treatment of illnesses and the promotion of health throughout society.

But the use of the samples and data by third parties, such as the pharmaceutical industry and academic researchers, raises a range of ethical questions such as, what should the terms of access be and what mechanism should be adopted for sharing the benefits from research? The new study by a team from the Science and Technology Studies Unit (SATSU) in the University’s Department of Sociology will help to ensure that policies already established by UK Biobank remain fit for purpose in the future.

The study is funded by the UK Biobank Ethics and Governance Council (EGC), an independent monitoring body which is funded by the Wellcome Trust and the Medical Research Council.

Dr Graham Lewis, one of the SATSU research team, said: “The UK Biobank project raises numerous scientific, ethical and logistical issues and its success will depend on an appropriate and robust policy for third party access.”

Professor Graeme Laurie, Chair of the EGC said: “The role of the EGC is to advise and monitor UK Biobank in developing the best possible policies for managing the research resource. This important study will provide us with a better understanding of public attitudes towards access issues, and this will feed directly into our advice to UK Biobank.”

David Garner | alfa
Further information:
http://www.ukbiobank.ac.uk
http://www.egcukbiobank.org.uk/
http://www.york.ac.uk/admin/presspr/pressreleases/medicaldatabase.htm

More articles from Science Education:

nachricht New Master’s programme: University of Kaiserslautern educates experts in quantum technology
15.03.2017 | Technische Universität Kaiserslautern

nachricht Decision-making research in children: Rules of thumb are learned with time
19.10.2016 | Max-Planck-Institut für Bildungsforschung

All articles from Science Education >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: A Challenging European Research Project to Develop New Tiny Microscopes

The Institute of Semiconductor Technology and the Institute of Physical and Theoretical Chemistry, both members of the Laboratory for Emerging Nanometrology (LENA), at Technische Universität Braunschweig are partners in a new European research project entitled ChipScope, which aims to develop a completely new and extremely small optical microscope capable of observing the interior of living cells in real time. A consortium of 7 partners from 5 countries will tackle this issue with very ambitious objectives during a four-year research program.

To demonstrate the usefulness of this new scientific tool, at the end of the project the developed chip-sized microscope will be used to observe in real-time...

Im Focus: Giant Magnetic Fields in the Universe

Astronomers from Bonn and Tautenburg in Thuringia (Germany) used the 100-m radio telescope at Effelsberg to observe several galaxy clusters. At the edges of these large accumulations of dark matter, stellar systems (galaxies), hot gas, and charged particles, they found magnetic fields that are exceptionally ordered over distances of many million light years. This makes them the most extended magnetic fields in the universe known so far.

The results will be published on March 22 in the journal „Astronomy & Astrophysics“.

Galaxy clusters are the largest gravitationally bound structures in the universe. With a typical extent of about 10 million light years, i.e. 100 times the...

Im Focus: Tracing down linear ubiquitination

Researchers at the Goethe University Frankfurt, together with partners from the University of Tübingen in Germany and Queen Mary University as well as Francis Crick Institute from London (UK) have developed a novel technology to decipher the secret ubiquitin code.

Ubiquitin is a small protein that can be linked to other cellular proteins, thereby controlling and modulating their functions. The attachment occurs in many...

Im Focus: Perovskite edges can be tuned for optoelectronic performance

Layered 2D material improves efficiency for solar cells and LEDs

In the eternal search for next generation high-efficiency solar cells and LEDs, scientists at Los Alamos National Laboratory and their partners are creating...

Im Focus: Polymer-coated silicon nanosheets as alternative to graphene: A perfect team for nanoelectronics

Silicon nanosheets are thin, two-dimensional layers with exceptional optoelectronic properties very similar to those of graphene. Albeit, the nanosheets are less stable. Now researchers at the Technical University of Munich (TUM) have, for the first time ever, produced a composite material combining silicon nanosheets and a polymer that is both UV-resistant and easy to process. This brings the scientists a significant step closer to industrial applications like flexible displays and photosensors.

Silicon nanosheets are thin, two-dimensional layers with exceptional optoelectronic properties very similar to those of graphene. Albeit, the nanosheets are...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

Event News

International Land Use Symposium ILUS 2017: Call for Abstracts and Registration open

20.03.2017 | Event News

CONNECT 2017: International congress on connective tissue

14.03.2017 | Event News

ICTM Conference: Turbine Construction between Big Data and Additive Manufacturing

07.03.2017 | Event News

 
Latest News

'On-off switch' brings researchers a step closer to potential HIV vaccine

30.03.2017 | Health and Medicine

Penn studies find promise for innovations in liquid biopsies

30.03.2017 | Health and Medicine

An LED-based device for imaging radiation induced skin damage

30.03.2017 | Medical Engineering

VideoLinks
B2B-VideoLinks
More VideoLinks >>>