Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

Voluntary Health Organizations: Publishers Announce Major Information Initiative

09.12.2004


Service Will Allow Patients Direct Access to Latest Research



Scientific publishers and the nation’s leading voluntary health organizations have announced a groundbreaking initiative to help patients and caregivers close a critical information gap.

Scheduled to launch as a pilot project in Spring 2005, patientINFORM (www.patientinform.org) is a free, online service dedicated to disseminating original medical research directly to consumers. A collaborative effort of leading voluntary health organizations, scholarly and medical publishers, medical societies, and information professionals, patientINFORM will provide patients and their caregivers with online access to up-to-date, reliable research for specific diseases. Participating voluntary health organizations will integrate the information into materials created for patients and link to free full-text research articles and additional selected material on journal websites.


“Not only will patientINFORM connect patients and their caregivers with the latest research, it will help them to put it into context. By making it easier to understand research findings, patientINFORM will empower patients to have a more productive dialogue with their physicians and make well-informed decisions about care,” said Harmon J. Eyre, M.D., national chief medical officer of the American Cancer Society.

patientINFORM will initially focus on three diseases, cancer, diabetes, and heart disease, through the participation of three voluntary health organizations: The American Cancer Society (ACS), the American Diabetes Association (ADA), and American Heart Association (AHA); more than 20 publishers (see attached list); the International Association of STM Publishers; the Association of American Publishers/Professional & Scholarly Publishers; the Welch Medical Library at The Johns Hopkins University, and MedLinePlus (part of the National Institutes of Health’s National Library of Medicine).

This groundbreaking initiative is being driven by recent trends indicating that public awareness of clinical research, heightened by media coverage and fueled by the spread of broadband Internet, has led more and more patients to go online to find the latest information about treatment options. Still, even many knowledgeable consumers can find it difficult to fully understand, evaluate, and make sound decisions based on what they learn from their Internet research.

“The health literacy problem has been called a ‘silent epidemic’ because many patients are embarrassed or intimidated and do not seek help to understand difficult or complicated information. The result is that a crucial part of their medical care is missing, and so they put their health at risk,” said Richard Kahn, Ph.D., chief scientific and medical officer of the American Diabetes Association.

Under the patientINFORM web-based pilot project, when patients, their caregivers, or others visit the voluntary health organization websites with general questions and to read news stories and other web content created by the organizations to help interpret the latest research, they will also have the option of being connected directly to the source through links to free full text of the research articles on the journal websites. Healthcare consumers will be able to access selected journal articles as soon as they are published. Each health organization’s website will be listed on www.patientinform.org (see note attached).

Later phases of patientINFORM will extend services to cover a wider range of medical conditions and draw upon the offerings of a broader group of publishers.

“patientINFORM’s motto, Access + Interpretation=Understanding + Empowerment underscores the guiding principle of this initiative,” explained Rose Marie Robertson, MD, the chief science officer of the American Heart Association. “The active involvement of the three largest and most trusted voluntary health organizations in the world will help patients and caregivers understand and act upon the latest research on the diseases and conditions that afflict millions of Americans.”

Participating publishers will provide the voluntary health organizations with increased online access to their peer-reviewed biomedical journals immediately upon publication. Content from back issues of scholarly journals will also be available to the groups, broadening access to include a vast array of research articles. The groups will be able to search the most current American, European, and other international research to help them identify relevant advances on specific diseases and treatments which they will then be able to pass on to patients.

patientInform will help patients and caregivers world-wide, including many European consumers, with access to important medical research. Those organizations involved with patientInform include European publishers and associations such as the British Medical Journal Publishing Group, Blackwell Publishing, Elsevier, Nature Publishing Group, and the International Association of STM Publishers.

Dawn Peters | alfa
Further information:
http://www.blackwellpublishing.com

More articles from Health and Medicine:

nachricht Penn vet research identifies new target for taming Ebola
12.01.2017 | University of Pennsylvania

nachricht The strange double life of Dab2
10.01.2017 | University of Miami Miller School of Medicine

All articles from Health and Medicine >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: Designing Architecture with Solar Building Envelopes

Among the general public, solar thermal energy is currently associated with dark blue, rectangular collectors on building roofs. Technologies are needed for aesthetically high quality architecture which offer the architect more room for manoeuvre when it comes to low- and plus-energy buildings. With the “ArKol” project, researchers at Fraunhofer ISE together with partners are currently developing two façade collectors for solar thermal energy generation, which permit a high degree of design flexibility: a strip collector for opaque façade sections and a solar thermal blind for transparent sections. The current state of the two developments will be presented at the BAU 2017 trade fair.

As part of the “ArKol – development of architecturally highly integrated façade collectors with heat pipes” project, Fraunhofer ISE together with its partners...

Im Focus: How to inflate a hardened concrete shell with a weight of 80 t

At TU Wien, an alternative for resource intensive formwork for the construction of concrete domes was developed. It is now used in a test dome for the Austrian Federal Railways Infrastructure (ÖBB Infrastruktur).

Concrete shells are efficient structures, but not very resource efficient. The formwork for the construction of concrete domes alone requires a high amount of...

Im Focus: Bacterial Pac Man molecule snaps at sugar

Many pathogens use certain sugar compounds from their host to help conceal themselves against the immune system. Scientists at the University of Bonn have now, in cooperation with researchers at the University of York in the United Kingdom, analyzed the dynamics of a bacterial molecule that is involved in this process. They demonstrate that the protein grabs onto the sugar molecule with a Pac Man-like chewing motion and holds it until it can be used. Their results could help design therapeutics that could make the protein poorer at grabbing and holding and hence compromise the pathogen in the host. The study has now been published in “Biophysical Journal”.

The cells of the mouth, nose and intestinal mucosa produce large quantities of a chemical called sialic acid. Many bacteria possess a special transport system...

Im Focus: Newly proposed reference datasets improve weather satellite data quality

UMD, NOAA collaboration demonstrates suitability of in-orbit datasets for weather satellite calibration

"Traffic and weather, together on the hour!" blasts your local radio station, while your smartphone knows the weather halfway across the world. A network of...

Im Focus: Repairing defects in fiber-reinforced plastics more efficiently

Fiber-reinforced plastics (FRP) are frequently used in the aeronautic and automobile industry. However, the repair of workpieces made of these composite materials is often less profitable than exchanging the part. In order to increase the lifetime of FRP parts and to make them more eco-efficient, the Laser Zentrum Hannover e.V. (LZH) and the Apodius GmbH want to combine a new measuring device for fiber layer orientation with an innovative laser-based repair process.

Defects in FRP pieces may be production or operation-related. Whether or not repair is cost-effective depends on the geometry of the defective area, the tools...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

Event News

12V, 48V, high-voltage – trends in E/E automotive architecture

10.01.2017 | Event News

2nd Conference on Non-Textual Information on 10 and 11 May 2017 in Hannover

09.01.2017 | Event News

Nothing will happen without batteries making it happen!

05.01.2017 | Event News

 
Latest News

Multiregional brain on a chip

16.01.2017 | Power and Electrical Engineering

New technology enables 5-D imaging in live animals, humans

16.01.2017 | Information Technology

Researchers develop environmentally friendly soy air filter

16.01.2017 | Power and Electrical Engineering

VideoLinks
B2B-VideoLinks
More VideoLinks >>>