These were the findings of a new study by Myrtle Perera (Marga Institute, Sri Lanka), David Molyneux (Liverpool School of Tropical Medicine, UK) and colleagues in the recently launched open-access journal PLoS Neglected Tropical Diseases.
Lymphatic filariasis (LF) is a tropical parasitic disease transmitted by mosquitoes that causes extreme swelling of the limbs and male genitals. Despite recent successes in preventing the transmission of LF, say the authors, some 40 million people worldwide who already have the disease have been largely neglected by public health policy makers.
If effective disease control interventions are to be successfully implemented, the researchers propose, the full extent of the disability must be understood. In order to inform future interventions and policy measures, the study sought a greater understanding of the consequences of the disease for individuals and their families, the barriers they face to accessing care, and their coping strategies.
The researchers conducted in-depth interviews with 60 people with LF in southern Sri Lanka. The participants described how the social isolation from stigma caused emotional distress and delayed diagnosis and treatment. Free treatment services at government clinics were avoided because the participants’ condition would be identifiable in public.
One participant said: “I am mentally broken down and do not know how long I can live like this, shunned and rejected and confined to this house.”
While many aspects of the disease such as risk of infection and access to treatment facilities varied according to economic status, loss of income due to the condition was reported by all households in the sample, across all income levels. Households that were already relying on low incomes before infection were pushed into near destitution.
The authors call for an expansion of LF control programs beyond measures to break the transmission of disease. “Even if the LF elimination program is successful in arresting transmission of the disease so that there are no new cases,” they say, “hundreds of thousands of people in Sri Lanka will continue to suffer clinical manifestations of the disease and will remain trapped in poverty. The affected households will need help and support for many years despite transmission having been arrested.”
CITATION: Perera M, Whitehead M, Molyneux D, Weerasooriya M, Gunatilleke G (2007) Neglected Patients with a Neglected Disease? A Qualitative Study of Lymphatic Filariasis. PLoS Negl Trop Dis 1(2): e128. doi:10.1371/journal.pntd.0000128
Andrew Hyde | alfa
Symbiotic bacteria: from hitchhiker to beetle bodyguard
28.04.2017 | Johannes Gutenberg-Universität Mainz
Nose2Brain – Better Therapy for Multiple Sclerosis
28.04.2017 | Fraunhofer-Institut für Grenzflächen- und Bioverfahrenstechnik IGB
More and more automobile companies are focusing on body parts made of carbon fiber reinforced plastics (CFRP). However, manufacturing and repair costs must be further reduced in order to make CFRP more economical in use. Together with the Volkswagen AG and five other partners in the project HolQueSt 3D, the Laser Zentrum Hannover e.V. (LZH) has developed laser processes for the automatic trimming, drilling and repair of three-dimensional components.
Automated manufacturing processes are the basis for ultimately establishing the series production of CFRP components. In the project HolQueSt 3D, the LZH has...
Reflecting the structure of composites found in nature and the ancient world, researchers at the University of Illinois at Urbana-Champaign have synthesized thin carbon nanotube (CNT) textiles that exhibit both high electrical conductivity and a level of toughness that is about fifty times higher than copper films, currently used in electronics.
"The structural robustness of thin metal films has significant importance for the reliable operation of smart skin and flexible electronics including...
The nearby, giant radio galaxy M87 hosts a supermassive black hole (BH) and is well-known for its bright jet dominating the spectrum over ten orders of magnitude in frequency. Due to its proximity, jet prominence, and the large black hole mass, M87 is the best laboratory for investigating the formation, acceleration, and collimation of relativistic jets. A research team led by Silke Britzen from the Max Planck Institute for Radio Astronomy in Bonn, Germany, has found strong indication for turbulent processes connecting the accretion disk and the jet of that galaxy providing insights into the longstanding problem of the origin of astrophysical jets.
Supermassive black holes form some of the most enigmatic phenomena in astrophysics. Their enormous energy output is supposed to be generated by the...
The probability to find a certain number of photons inside a laser pulse usually corresponds to a classical distribution of independent events, the so-called...
Microprocessors based on atomically thin materials hold the promise of the evolution of traditional processors as well as new applications in the field of flexible electronics. Now, a TU Wien research team led by Thomas Müller has made a breakthrough in this field as part of an ongoing research project.
Two-dimensional materials, or 2D materials for short, are extremely versatile, although – or often more precisely because – they are made up of just one or a...
28.04.2017 | Event News
20.04.2017 | Event News
18.04.2017 | Event News
28.04.2017 | Medical Engineering
28.04.2017 | Earth Sciences
28.04.2017 | Life Sciences