Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

EuroGentest calls on Poland to lead the way in adopting OECD guidelines on genetic testing

20.09.2007
Key stakeholders attend special meeting in Warsaw

Genetic testing technology and services are developing at an incredible speed. However, it is often difficult if not impossible for politicians and health officials to keep track of the implications for both professionals and patients.

In June this year, the OECD approved new guidelines to provide a framework for countries seeking to develop their genetic testing services. EuroGentest, a major EU-funded project dedicated to harmonising genetics testing services across Europe, will hold today in Poland the first of a series of roadshows aimed at encouraging EU member states to implement the new OECD guidelines.

Poland is an ideal starting point for a variety of compelling reasons, according to roadshow host and leading Polish geneticist, Professor Michal Witt: “Firstly we have a scarcity of legal regulations in Poland regarding genetic testing, matched by a reluctance of politicans and legislators to get involved in what is admittedly a difficult area. We also have the contrast of highly professional state-funded clinical genetics centers being challenged by a growing number of commerical labs, clinics and companies offering genetic testing with no further interpretation of results or counselling. And of course there is a growing interest in and demand from the public for genetic testing. We therefore hope that this EuroGentest-sponsored meeting will encourage Polish politicians to commit to being one of the first countries to fully implement the OECD guidelines as soon as possible.”

... more about:
»OECD »Poland »Professional »guidelines

The key messages are being delivered to an audience of geneticists, healthcare professionals, politicans and other stakeholders by leading European authorities. Dr David Barton, Chief Scientist at the National Centre for Medical Genetics in Dublin, Ireland who was personally involved in drawing up the OECD guidelines, will stress the importance of proper quality assurance schemes being in place for genetic testing to ensure public confidence in results. Helena Kääriäinen, Research Professor, the National Institute of Public Health, Finland will explain that: “genetic counselling is an integral part of genetic testing, as patients should understand why the test is offered and what are the implications of the result to the individual and the family.” She also pointed out that the Council of Europe is preparing an additional protocol on genetic testing to its Bioethical Convention; which all members are expected to adopt. Finally, Alastair Kent from leading patient interest group GIG will talk on the need to consult with patients when devising services: “Testing needs to deliver information that is comprehensive and accurate in a timely, user friendly way if patients are to be able to make informed decisions that they can live with afterwards.”

Following the roadshow in Poland, EuroGentest intends to hold similar meetings across the EU and associated member states.

Richard Hayhurst | alfa
Further information:
http://www.eurogentest.org

Further reports about: OECD Poland Professional guidelines

More articles from Life Sciences:

nachricht How brains surrender to sleep
23.06.2017 | IMP - Forschungsinstitut für Molekulare Pathologie GmbH

nachricht A new technique isolates neuronal activity during memory consolidation
22.06.2017 | Spanish National Research Council (CSIC)

All articles from Life Sciences >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: Can we see monkeys from space? Emerging technologies to map biodiversity

An international team of scientists has proposed a new multi-disciplinary approach in which an array of new technologies will allow us to map biodiversity and the risks that wildlife is facing at the scale of whole landscapes. The findings are published in Nature Ecology and Evolution. This international research is led by the Kunming Institute of Zoology from China, University of East Anglia, University of Leicester and the Leibniz Institute for Zoo and Wildlife Research.

Using a combination of satellite and ground data, the team proposes that it is now possible to map biodiversity with an accuracy that has not been previously...

Im Focus: Climate satellite: Tracking methane with robust laser technology

Heatwaves in the Arctic, longer periods of vegetation in Europe, severe floods in West Africa – starting in 2021, scientists want to explore the emissions of the greenhouse gas methane with the German-French satellite MERLIN. This is made possible by a new robust laser system of the Fraunhofer Institute for Laser Technology ILT in Aachen, which achieves unprecedented measurement accuracy.

Methane is primarily the result of the decomposition of organic matter. The gas has a 25 times greater warming potential than carbon dioxide, but is not as...

Im Focus: How protons move through a fuel cell

Hydrogen is regarded as the energy source of the future: It is produced with solar power and can be used to generate heat and electricity in fuel cells. Empa researchers have now succeeded in decoding the movement of hydrogen ions in crystals – a key step towards more efficient energy conversion in the hydrogen industry of tomorrow.

As charge carriers, electrons and ions play the leading role in electrochemical energy storage devices and converters such as batteries and fuel cells. Proton...

Im Focus: A unique data centre for cosmological simulations

Scientists from the Excellence Cluster Universe at the Ludwig-Maximilians-Universität Munich have establised "Cosmowebportal", a unique data centre for cosmological simulations located at the Leibniz Supercomputing Centre (LRZ) of the Bavarian Academy of Sciences. The complete results of a series of large hydrodynamical cosmological simulations are available, with data volumes typically exceeding several hundred terabytes. Scientists worldwide can interactively explore these complex simulations via a web interface and directly access the results.

With current telescopes, scientists can observe our Universe’s galaxies and galaxy clusters and their distribution along an invisible cosmic web. From the...

Im Focus: Scientists develop molecular thermometer for contactless measurement using infrared light

Temperature measurements possible even on the smallest scale / Molecular ruby for use in material sciences, biology, and medicine

Chemists at Johannes Gutenberg University Mainz (JGU) in cooperation with researchers of the German Federal Institute for Materials Research and Testing (BAM)...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

Event News

Plants are networkers

19.06.2017 | Event News

Digital Survival Training for Executives

13.06.2017 | Event News

Global Learning Council Summit 2017

13.06.2017 | Event News

 
Latest News

Quantum thermometer or optical refrigerator?

23.06.2017 | Physics and Astronomy

A 100-year-old physics problem has been solved at EPFL

23.06.2017 | Physics and Astronomy

Equipping form with function

23.06.2017 | Information Technology

VideoLinks
B2B-VideoLinks
More VideoLinks >>>