Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

EuroGentest calls on Poland to lead the way in adopting OECD guidelines on genetic testing

20.09.2007
Key stakeholders attend special meeting in Warsaw

Genetic testing technology and services are developing at an incredible speed. However, it is often difficult if not impossible for politicians and health officials to keep track of the implications for both professionals and patients.

In June this year, the OECD approved new guidelines to provide a framework for countries seeking to develop their genetic testing services. EuroGentest, a major EU-funded project dedicated to harmonising genetics testing services across Europe, will hold today in Poland the first of a series of roadshows aimed at encouraging EU member states to implement the new OECD guidelines.

Poland is an ideal starting point for a variety of compelling reasons, according to roadshow host and leading Polish geneticist, Professor Michal Witt: “Firstly we have a scarcity of legal regulations in Poland regarding genetic testing, matched by a reluctance of politicans and legislators to get involved in what is admittedly a difficult area. We also have the contrast of highly professional state-funded clinical genetics centers being challenged by a growing number of commerical labs, clinics and companies offering genetic testing with no further interpretation of results or counselling. And of course there is a growing interest in and demand from the public for genetic testing. We therefore hope that this EuroGentest-sponsored meeting will encourage Polish politicians to commit to being one of the first countries to fully implement the OECD guidelines as soon as possible.”

... more about:
»OECD »Poland »Professional »guidelines

The key messages are being delivered to an audience of geneticists, healthcare professionals, politicans and other stakeholders by leading European authorities. Dr David Barton, Chief Scientist at the National Centre for Medical Genetics in Dublin, Ireland who was personally involved in drawing up the OECD guidelines, will stress the importance of proper quality assurance schemes being in place for genetic testing to ensure public confidence in results. Helena Kääriäinen, Research Professor, the National Institute of Public Health, Finland will explain that: “genetic counselling is an integral part of genetic testing, as patients should understand why the test is offered and what are the implications of the result to the individual and the family.” She also pointed out that the Council of Europe is preparing an additional protocol on genetic testing to its Bioethical Convention; which all members are expected to adopt. Finally, Alastair Kent from leading patient interest group GIG will talk on the need to consult with patients when devising services: “Testing needs to deliver information that is comprehensive and accurate in a timely, user friendly way if patients are to be able to make informed decisions that they can live with afterwards.”

Following the roadshow in Poland, EuroGentest intends to hold similar meetings across the EU and associated member states.

Richard Hayhurst | alfa
Further information:
http://www.eurogentest.org

Further reports about: OECD Poland Professional guidelines

More articles from Life Sciences:

nachricht New insights into the world of trypanosomes
23.08.2017 | Julius-Maximilians-Universität Würzburg

nachricht New Test for Rare Immunodeficiency
23.08.2017 | Universität Basel

All articles from Life Sciences >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: Fizzy soda water could be key to clean manufacture of flat wonder material: Graphene

Whether you call it effervescent, fizzy, or sparkling, carbonated water is making a comeback as a beverage. Aside from quenching thirst, researchers at the University of Illinois at Urbana-Champaign have discovered a new use for these "bubbly" concoctions that will have major impact on the manufacturer of the world's thinnest, flattest, and one most useful materials -- graphene.

As graphene's popularity grows as an advanced "wonder" material, the speed and quality at which it can be manufactured will be paramount. With that in mind,...

Im Focus: Exotic quantum states made from light: Physicists create optical “wells” for a super-photon

Physicists at the University of Bonn have managed to create optical hollows and more complex patterns into which the light of a Bose-Einstein condensate flows. The creation of such highly low-loss structures for light is a prerequisite for complex light circuits, such as for quantum information processing for a new generation of computers. The researchers are now presenting their results in the journal Nature Photonics.

Light particles (photons) occur as tiny, indivisible portions. Many thousands of these light portions can be merged to form a single super-photon if they are...

Im Focus: Circular RNA linked to brain function

For the first time, scientists have shown that circular RNA is linked to brain function. When a RNA molecule called Cdr1as was deleted from the genome of mice, the animals had problems filtering out unnecessary information – like patients suffering from neuropsychiatric disorders.

While hundreds of circular RNAs (circRNAs) are abundant in mammalian brains, one big question has remained unanswered: What are they actually good for? In the...

Im Focus: RAVAN CubeSat measures Earth's outgoing energy

An experimental small satellite has successfully collected and delivered data on a key measurement for predicting changes in Earth's climate.

The Radiometer Assessment using Vertically Aligned Nanotubes (RAVAN) CubeSat was launched into low-Earth orbit on Nov. 11, 2016, in order to test new...

Im Focus: Scientists shine new light on the “other high temperature superconductor”

A study led by scientists of the Max Planck Institute for the Structure and Dynamics of Matter (MPSD) at the Center for Free-Electron Laser Science in Hamburg presents evidence of the coexistence of superconductivity and “charge-density-waves” in compounds of the poorly-studied family of bismuthates. This observation opens up new perspectives for a deeper understanding of the phenomenon of high-temperature superconductivity, a topic which is at the core of condensed matter research since more than 30 years. The paper by Nicoletti et al has been published in the PNAS.

Since the beginning of the 20th century, superconductivity had been observed in some metals at temperatures only a few degrees above the absolute zero (minus...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

Event News

Call for Papers – ICNFT 2018, 5th International Conference on New Forming Technology

16.08.2017 | Event News

Sustainability is the business model of tomorrow

04.08.2017 | Event News

Clash of Realities 2017: Registration now open. International Conference at TH Köln

26.07.2017 | Event News

 
Latest News

Cholesterol-lowering drugs may fight infectious disease

22.08.2017 | Health and Medicine

Meter-sized single-crystal graphene growth becomes possible

22.08.2017 | Materials Sciences

Repairing damaged hearts with self-healing heart cells

22.08.2017 | Life Sciences

VideoLinks
B2B-VideoLinks
More VideoLinks >>>