Results of the study, a part of a larger statewide needs assessment for families that have children with disabilities, is published in the current issue of Rehabilitation Psychology.
Seven focus groups were conducted in Texas with 40 parents of children with disabilities, and data collected from these focus groups were coded into themes.
"The qualitative data analysis yielded four significant themes that serve as barriers to positive parent wellbeing: access to information and services, financial barriers, school and community inclusion, and family support," notes Aaron Resch, the lead author of the article, whose expertise includes caregiver well-beings.
"The parents in this study did not identify child-specific variables, such as disability severity and child behavior problems, as the most significant challenges associated with raising a child with a disability," Resch explains. "They also did not describe their experience of raising a child with a disability as one of burden and pathology.
"Rather, our findings suggest that many parents perceive a fundamental lack of match between their needs and the resources and supports available to meet those needs," the Texas A&M researcher adds. "It is this lack of a match that seems to be one of the greatest impediments to optimal wellbeing for these parents."
Parents of children with disabilities have more influence on the wellness of the child than any other individual or healthcare provider. They provide an invaluable and irreplaceable service to society.
"Our findings support the need for more family-centered services for parents raising a child with a disability," he says. "Particular attention should be given to the family's needs and the resources and environmental/social supports available for them to meet those needs."
The other authors are Gerardo Mireles, Michael R. Benz, Cheryl Grenwelge, Rick Peterson and Dalun Zhang, all of whom are members of the center's staff. The center is part of the Department of Educational Psychology in Texas A&M's College of Education and Human Development. The Family to Family Network in Houston provided assistance for this study.
About research at Texas A&M University: As one of the world's leading research institutions, Texas A&M is in the vanguard in making significant contributions to the storehouse of knowledge, including that of science and technology. Research conducted at Texas A&M represents an annual investment of more than $582 million, which ranks third nationally for universities without a medical school, and underwrites approximately 3,500 sponsored projects. That research creates new knowledge that provides basic, fundamental and applied contributions resulting in many cases in economic benefits to the state, nation and world.
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Keith Randall | EurekAlert!
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