Forum for Science, Industry and Business

Sponsored by:     3M 
Search our Site:

 

Study finds racial, ethnic disparities in family-centered care for kids with special health needs

20.05.2010
The concept of family-centered care for children with special health care needs is based on the understanding that a partnership among patients, families and health care professionals is essential to providing quality care.

Components of family-centered care include adequate time spent with the patient, attentive listening, care that is sensitive to the family's values and customs, the provision of necessary information, and helping the family feel like a partner in the child's care.

While previous studies have indicated that racial and ethnic disparities exist in family-centered care, the research has not highlighted specific components associated with such disparities.

Now, a new, nationally representative study by researchers from UCLA and the University of Texas Southwestern Medical Center has found that African American and Latino children with special health care needs, and those who come from households in which the primary language is not English, are less likely to receive family-centered care than are white children and those from households where English is the primary language.

In addition, the study authors found that there were disparities in two critical components of care provided to African American and Latino children and those from households where English is not the primary language: having adequate time with the child's health care provider and receiving care that is sensitive to the family's values and customs. The researchers said that improvements in these components could greatly reduce these disparities for family-centered care.

The findings, which will be published in the June issue of the journal Pediatrics, are currently available online. This is the first study to demonstrate significant racial/ethnic and language disparities, both in family-centered care overall and in certain components of family-centered care. The study controlled for several factors, including child health, socioeconomics and health care access, among children with special health care needs in the United States.

"We were surprised that these wide disparities persisted, even after controlling for a number of socioeconomic and health factors," said lead author Dr. Tumaini R. Coker, assistant professor of pediatrics at Mattel Children's Hospital UCLA and a natural scientist at the RAND Corp. "Efforts to combat family-centered care disparities for children with special health care needs can focus on two components for which we found important disparities both by race and ethnicity and household primary language: the provider's time and cultural sensitivity."

Researchers used data collected from 2005 through 2006 from the National Survey of Children with Special Health Care Needs and found that, overall, 66 percent of children with special health care needs received family-centered care.

However, significantly smaller proportions of Latino (47 percent), African American (53 percent), multiracial (66 percent) and other race/ethnicity (58 percent) children received family-centered care than did white children (72 percent).

Additionally, when compared with white children, smaller proportions of Latino, African American and other race/ethnicity children who received family-centered care received adequate time with their provider and care that was sensitive to the family's values and customs. Children with special health care needs from households in which English is not the primary language were also less likely to receive these two care components.

The next stage of research will include testing interventions to improve family-centered care and to reduce these disparities.

Additional study authors included Dr. Michael A. Rodriguez, professor of family medicine at the David Geffen School of Medicine at UCLA, and Dr. Glenn Flores, professor of pediatrics at the University of Texas Southwestern Medical Center and Children's Medical Center Dallas. The authors have no financial ties to disclose.

This study was supported by the Network for Multicultural Research on Health and Healthcare Quality Scholars Program, which is funded by the Robert Wood Johnson Foundation.

Amy Albin | EurekAlert!
Further information:
http://www.ucla.edu

More articles from Studies and Analyses:

nachricht Multi-year study finds 'hotspots' of ammonia over world's major agricultural areas
17.03.2017 | University of Maryland

nachricht Diabetes Drug May Improve Bone Fat-induced Defects of Fracture Healing
17.03.2017 | Deutsches Institut für Ernährungsforschung Potsdam-Rehbrücke

All articles from Studies and Analyses >>>

The most recent press releases about innovation >>>

Die letzten 5 Focus-News des innovations-reports im Überblick:

Im Focus: Giant Magnetic Fields in the Universe

Astronomers from Bonn and Tautenburg in Thuringia (Germany) used the 100-m radio telescope at Effelsberg to observe several galaxy clusters. At the edges of these large accumulations of dark matter, stellar systems (galaxies), hot gas, and charged particles, they found magnetic fields that are exceptionally ordered over distances of many million light years. This makes them the most extended magnetic fields in the universe known so far.

The results will be published on March 22 in the journal „Astronomy & Astrophysics“.

Galaxy clusters are the largest gravitationally bound structures in the universe. With a typical extent of about 10 million light years, i.e. 100 times the...

Im Focus: Tracing down linear ubiquitination

Researchers at the Goethe University Frankfurt, together with partners from the University of Tübingen in Germany and Queen Mary University as well as Francis Crick Institute from London (UK) have developed a novel technology to decipher the secret ubiquitin code.

Ubiquitin is a small protein that can be linked to other cellular proteins, thereby controlling and modulating their functions. The attachment occurs in many...

Im Focus: Perovskite edges can be tuned for optoelectronic performance

Layered 2D material improves efficiency for solar cells and LEDs

In the eternal search for next generation high-efficiency solar cells and LEDs, scientists at Los Alamos National Laboratory and their partners are creating...

Im Focus: Polymer-coated silicon nanosheets as alternative to graphene: A perfect team for nanoelectronics

Silicon nanosheets are thin, two-dimensional layers with exceptional optoelectronic properties very similar to those of graphene. Albeit, the nanosheets are less stable. Now researchers at the Technical University of Munich (TUM) have, for the first time ever, produced a composite material combining silicon nanosheets and a polymer that is both UV-resistant and easy to process. This brings the scientists a significant step closer to industrial applications like flexible displays and photosensors.

Silicon nanosheets are thin, two-dimensional layers with exceptional optoelectronic properties very similar to those of graphene. Albeit, the nanosheets are...

Im Focus: Researchers Imitate Molecular Crowding in Cells

Enzymes behave differently in a test tube compared with the molecular scrum of a living cell. Chemists from the University of Basel have now been able to simulate these confined natural conditions in artificial vesicles for the first time. As reported in the academic journal Small, the results are offering better insight into the development of nanoreactors and artificial organelles.

Enzymes behave differently in a test tube compared with the molecular scrum of a living cell. Chemists from the University of Basel have now been able to...

All Focus news of the innovation-report >>>

Anzeige

Anzeige

Event News

International Land Use Symposium ILUS 2017: Call for Abstracts and Registration open

20.03.2017 | Event News

CONNECT 2017: International congress on connective tissue

14.03.2017 | Event News

ICTM Conference: Turbine Construction between Big Data and Additive Manufacturing

07.03.2017 | Event News

 
Latest News

Northern oceans pumped CO2 into the atmosphere

27.03.2017 | Earth Sciences

Fingerprint' technique spots frog populations at risk from pollution

27.03.2017 | Life Sciences

Big data approach to predict protein structure

27.03.2017 | Life Sciences

VideoLinks
B2B-VideoLinks
More VideoLinks >>>