Components of family-centered care include adequate time spent with the patient, attentive listening, care that is sensitive to the family's values and customs, the provision of necessary information, and helping the family feel like a partner in the child's care.
While previous studies have indicated that racial and ethnic disparities exist in family-centered care, the research has not highlighted specific components associated with such disparities.
Now, a new, nationally representative study by researchers from UCLA and the University of Texas Southwestern Medical Center has found that African American and Latino children with special health care needs, and those who come from households in which the primary language is not English, are less likely to receive family-centered care than are white children and those from households where English is the primary language.
In addition, the study authors found that there were disparities in two critical components of care provided to African American and Latino children and those from households where English is not the primary language: having adequate time with the child's health care provider and receiving care that is sensitive to the family's values and customs. The researchers said that improvements in these components could greatly reduce these disparities for family-centered care.
The findings, which will be published in the June issue of the journal Pediatrics, are currently available online. This is the first study to demonstrate significant racial/ethnic and language disparities, both in family-centered care overall and in certain components of family-centered care. The study controlled for several factors, including child health, socioeconomics and health care access, among children with special health care needs in the United States.
"We were surprised that these wide disparities persisted, even after controlling for a number of socioeconomic and health factors," said lead author Dr. Tumaini R. Coker, assistant professor of pediatrics at Mattel Children's Hospital UCLA and a natural scientist at the RAND Corp. "Efforts to combat family-centered care disparities for children with special health care needs can focus on two components for which we found important disparities both by race and ethnicity and household primary language: the provider's time and cultural sensitivity."
Researchers used data collected from 2005 through 2006 from the National Survey of Children with Special Health Care Needs and found that, overall, 66 percent of children with special health care needs received family-centered care.
However, significantly smaller proportions of Latino (47 percent), African American (53 percent), multiracial (66 percent) and other race/ethnicity (58 percent) children received family-centered care than did white children (72 percent).
Additionally, when compared with white children, smaller proportions of Latino, African American and other race/ethnicity children who received family-centered care received adequate time with their provider and care that was sensitive to the family's values and customs. Children with special health care needs from households in which English is not the primary language were also less likely to receive these two care components.
The next stage of research will include testing interventions to improve family-centered care and to reduce these disparities.
Additional study authors included Dr. Michael A. Rodriguez, professor of family medicine at the David Geffen School of Medicine at UCLA, and Dr. Glenn Flores, professor of pediatrics at the University of Texas Southwestern Medical Center and Children's Medical Center Dallas. The authors have no financial ties to disclose.
This study was supported by the Network for Multicultural Research on Health and Healthcare Quality Scholars Program, which is funded by the Robert Wood Johnson Foundation.
Amy Albin | EurekAlert!
Smart Data Transformation – Surfing the Big Wave
02.12.2016 | Fraunhofer-Institut für Angewandte Informationstechnik FIT
Climate change could outpace EPA Lake Champlain protections
18.11.2016 | University of Vermont
In recent years, lasers with ultrashort pulses (USP) down to the femtosecond range have become established on an industrial scale. They could advance some applications with the much-lauded “cold ablation” – if that meant they would then achieve more throughput. A new generation of process engineering that will address this issue in particular will be discussed at the “4th UKP Workshop – Ultrafast Laser Technology” in April 2017.
Even back in the 1990s, scientists were comparing materials processing with nanosecond, picosecond and femtosesecond pulses. The result was surprising:...
Have you ever wondered how you see the world? Vision is about photons of light, which are packets of energy, interacting with the atoms or molecules in what...
A multi-institutional research collaboration has created a novel approach for fabricating three-dimensional micro-optics through the shape-defined formation of porous silicon (PSi), with broad impacts in integrated optoelectronics, imaging, and photovoltaics.
Working with colleagues at Stanford and The Dow Chemical Company, researchers at the University of Illinois at Urbana-Champaign fabricated 3-D birefringent...
In experiments with magnetic atoms conducted at extremely low temperatures, scientists have demonstrated a unique phase of matter: The atoms form a new type of quantum liquid or quantum droplet state. These so called quantum droplets may preserve their form in absence of external confinement because of quantum effects. The joint team of experimental physicists from Innsbruck and theoretical physicists from Hannover report on their findings in the journal Physical Review X.
“Our Quantum droplets are in the gas phase but they still drop like a rock,” explains experimental physicist Francesca Ferlaino when talking about the...
The Max Planck Institute for Physics (MPP) is opening up a new research field. A workshop from November 21 - 22, 2016 will mark the start of activities for an innovative axion experiment. Axions are still only purely hypothetical particles. Their detection could solve two fundamental problems in particle physics: What dark matter consists of and why it has not yet been possible to directly observe a CP violation for the strong interaction.
The “MADMAX” project is the MPP’s commitment to axion research. Axions are so far only a theoretical prediction and are difficult to detect: on the one hand,...
16.11.2016 | Event News
01.11.2016 | Event News
14.10.2016 | Event News
07.12.2016 | Health and Medicine
07.12.2016 | Life Sciences
07.12.2016 | Health and Medicine