This study, led by Arturo Álvarez Roldán, aspired to understand the implications of cancer for children diagnosed with the disease as well as their families, their experiences and worries, their relationship with the health system and their care needs during the disease treatment.
In order to carry out this study, the author interviewed 14 children staying at the Hospital Universitario Virgen Nieves or the Hospital Universitario San Cecilio de Granada and 22 mothers between June 2003 and October 2005, as well as their families during the three years previous to the study. This work combined participatory observation together with individual and group interviews with children and mothers in 14 clinic interviews.
Strong emotional impact
According to the results of her work, the researcher states that cancer diagnosis “causes a strong emotional impact” on the child, with negative feelings of uncertainty, fault, powerlessness and significant confusion”. From that moment on, the child, mother and, partly, the rest of the family life “revolve around the disease and treatment.”The most traumatic experiences are connected with the procedures, the treatment side effects and the isolation imposed by neutropenia, affecting the children not only physically and psychologically but also at a social and a school level.
In the work, carried out by the University of Granada, there appears a significant quantity of needs and improvement proposals, notably that of adapting the sanitary resources to the children and mothers’ specific needs and providing real, comprehensive attention to these patients. Nevertheless, the care received is well appreciated by those affected, who value the professional support.
Since the diagnosis of the disease, mothers express a change in their life values, “giving more importance to the day by day, to each moment, to the emotional aspects, and not to future or material things,” explains González Carrión.
The stigma goes on
“The data about successful treatments has not had a profound effect,” says the researcher, “as the diagnosis is still related to the idea of a death threat. The metaphors used when talking about cancer aroused suffering, which contributes to the perpetuation of the disease’s negative aspects. The stigma surrounding the disease, together with the delicate state of health in certain periods produces social isolation in the child and the family.”
The information obtained through the surveys of the doctoral thesis is of great interest for getting to know situations experienced by those affected, which means the possibility of naturally providing a more suitable assistance, adapted to their situation. The results of this research have been published in the magazine “NURE Investigation”.Reference
Antonio Marín Ruiz | alfa
Diagnoses: When Are Several Opinions Better Than One?
19.07.2016 | Max-Planck-Institut für Bildungsforschung
High in calories and low in nutrients when adolescents share pictures of food online
07.04.2016 | University of Gothenburg
Researchers from the Institute for Quantum Computing (IQC) at the University of Waterloo led the development of a new extensible wiring technique capable of controlling superconducting quantum bits, representing a significant step towards to the realization of a scalable quantum computer.
"The quantum socket is a wiring method that uses three-dimensional wires based on spring-loaded pins to address individual qubits," said Jeremy Béjanin, a PhD...
In a paper in Scientific Reports, a research team at Worcester Polytechnic Institute describes a novel light-activated phenomenon that could become the basis for applications as diverse as microscopic robotic grippers and more efficient solar cells.
A research team at Worcester Polytechnic Institute (WPI) has developed a revolutionary, light-activated semiconductor nanocomposite material that can be used...
By forcefully embedding two silicon atoms in a diamond matrix, Sandia researchers have demonstrated for the first time on a single chip all the components needed to create a quantum bridge to link quantum computers together.
"People have already built small quantum computers," says Sandia researcher Ryan Camacho. "Maybe the first useful one won't be a single giant quantum computer...
COMPAMED has become the leading international marketplace for suppliers of medical manufacturing. The trade fair, which takes place every November and is co-located to MEDICA in Dusseldorf, has been steadily growing over the past years and shows that medical technology remains a rapidly growing market.
In 2016, the joint pavilion by the IVAM Microtechnology Network, the Product Market “High-tech for Medical Devices”, will be located in Hall 8a again and will...
'Ferroelectric' materials can switch between different states of electrical polarization in response to an external electric field. This flexibility means they show promise for many applications, for example in electronic devices and computer memory. Current ferroelectric materials are highly valued for their thermal and chemical stability and rapid electro-mechanical responses, but creating a material that is scalable down to the tiny sizes needed for technologies like silicon-based semiconductors (Si-based CMOS) has proven challenging.
Now, Hiroshi Funakubo and co-workers at the Tokyo Institute of Technology, in collaboration with researchers across Japan, have conducted experiments to...
14.10.2016 | Event News
14.10.2016 | Event News
12.10.2016 | Event News
24.10.2016 | Power and Electrical Engineering
24.10.2016 | Life Sciences
24.10.2016 | Life Sciences