A model study with the title "Selbstwahrnehmung und Intervention (SEIN)" (self-perception and intervention), led by Associate Professor Dr. Birgit Panke-Kochinke and Prof. Dr. Sabine Bartholomeyczik, is being launched at the German Center for Neurodegenerative Diseases (DZNE).
A central goal of the study is to discover how the self-determination of people with dementia in the early stages of their illness can be fostered in an individual, precisely tailored, and thus resource-oriented manner. To address this issue, the study compares people with early-stage dementia who are living at home and are engaged in support groups with non-demented people suffering from multiple sclerosis in similar settings.
The objective is to investigate how their dealing with obstacles in everyday life has changed through the disease and how important their engagement in support groups is. Choosing people with multiple sclerosis as a reference group offers the opportunity to investigate what distinguishes the health care needs of dementia patients from those of people with other chronic diseases.
"To address the desires and needs of people with dementia, we find it is important to speak to them directly, listen to them, and try to capture from an individual perspective what resources and possibilities of support and guidance are appropriate in different phases of their lives," explains Panke-Kochinke. In the study, people with early dementia and people with multiple sclerosis are therefore asked in open, narrative interviews during group discussions how they deal with their disease.
Panke-Kochinke generally assumes that the interviewees can talk about themselves and their experiences and are able to define their situations in the research process in a self-determined manner. In both groups, however, it is possible that in some cases the disease manifests itself in language problems. It is so far unclear how to deal with these problems in a research setting. It is thus another key objective of the research project to develop ideal methodological standards.
Following the model study, a longitudinal study of people with dementia is planned to gain a better understanding of how the requirements and needs change during the course of the disease.
Katrin Weigmann | idw
New study: How does Europe become a leading player for software and IT services?
03.04.2017 | Fraunhofer-Institut für System- und Innovationsforschung (ISI)
Reusable carbon nanotubes could be the water filter of the future, says RIT study
30.03.2017 | Rochester Institute of Technology
An international team of physicists has monitored the scattering behaviour of electrons in a non-conducting material in real-time. Their insights could be beneficial for radiotherapy.
We can refer to electrons in non-conducting materials as ‘sluggish’. Typically, they remain fixed in a location, deep inside an atomic composite. It is hence...
Two-dimensional magnetic structures are regarded as a promising material for new types of data storage, since the magnetic properties of individual molecular building blocks can be investigated and modified. For the first time, researchers have now produced a wafer-thin ferrimagnet, in which molecules with different magnetic centers arrange themselves on a gold surface to form a checkerboard pattern. Scientists at the Swiss Nanoscience Institute at the University of Basel and the Paul Scherrer Institute published their findings in the journal Nature Communications.
Ferrimagnets are composed of two centers which are magnetized at different strengths and point in opposing directions. Two-dimensional, quasi-flat ferrimagnets...
An Australian-Chinese research team has created the world's thinnest hologram, paving the way towards the integration of 3D holography into everyday...
In the race to produce a quantum computer, a number of projects are seeking a way to create quantum bits -- or qubits -- that are stable, meaning they are not much affected by changes in their environment. This normally needs highly nonlinear non-dissipative elements capable of functioning at very low temperatures.
In pursuit of this goal, researchers at EPFL's Laboratory of Photonics and Quantum Measurements LPQM (STI/SB), have investigated a nonlinear graphene-based...
Dental plaque and the viscous brown slime in drainpipes are two familiar examples of bacterial biofilms. Removing such bacterial depositions from surfaces is...
23.05.2017 | Event News
22.05.2017 | Event News
17.05.2017 | Event News
23.05.2017 | Earth Sciences
23.05.2017 | Life Sciences
23.05.2017 | Physics and Astronomy