A model study with the title "Selbstwahrnehmung und Intervention (SEIN)" (self-perception and intervention), led by Associate Professor Dr. Birgit Panke-Kochinke and Prof. Dr. Sabine Bartholomeyczik, is being launched at the German Center for Neurodegenerative Diseases (DZNE).
A central goal of the study is to discover how the self-determination of people with dementia in the early stages of their illness can be fostered in an individual, precisely tailored, and thus resource-oriented manner. To address this issue, the study compares people with early-stage dementia who are living at home and are engaged in support groups with non-demented people suffering from multiple sclerosis in similar settings.
The objective is to investigate how their dealing with obstacles in everyday life has changed through the disease and how important their engagement in support groups is. Choosing people with multiple sclerosis as a reference group offers the opportunity to investigate what distinguishes the health care needs of dementia patients from those of people with other chronic diseases.
"To address the desires and needs of people with dementia, we find it is important to speak to them directly, listen to them, and try to capture from an individual perspective what resources and possibilities of support and guidance are appropriate in different phases of their lives," explains Panke-Kochinke. In the study, people with early dementia and people with multiple sclerosis are therefore asked in open, narrative interviews during group discussions how they deal with their disease.
Panke-Kochinke generally assumes that the interviewees can talk about themselves and their experiences and are able to define their situations in the research process in a self-determined manner. In both groups, however, it is possible that in some cases the disease manifests itself in language problems. It is so far unclear how to deal with these problems in a research setting. It is thus another key objective of the research project to develop ideal methodological standards.
Following the model study, a longitudinal study of people with dementia is planned to gain a better understanding of how the requirements and needs change during the course of the disease.
Katrin Weigmann | idw
Drone vs. truck deliveries: Which create less carbon pollution?
31.05.2017 | University of Washington
New study: How does Europe become a leading player for software and IT services?
03.04.2017 | Fraunhofer-Institut für System- und Innovationsforschung (ISI)
Computer scientists use wave packet theory to develop realistic, detailed water wave simulations in real time. Their results will be presented at this year’s SIGGRAPH conference.
Think about the last time you were at a lake, river, or the ocean. Remember the ripples of the water, the waves crashing against the rocks, the wake following...
An international team of scientists has proposed a new multi-disciplinary approach in which an array of new technologies will allow us to map biodiversity and the risks that wildlife is facing at the scale of whole landscapes. The findings are published in Nature Ecology and Evolution. This international research is led by the Kunming Institute of Zoology from China, University of East Anglia, University of Leicester and the Leibniz Institute for Zoo and Wildlife Research.
Using a combination of satellite and ground data, the team proposes that it is now possible to map biodiversity with an accuracy that has not been previously...
Heatwaves in the Arctic, longer periods of vegetation in Europe, severe floods in West Africa – starting in 2021, scientists want to explore the emissions of the greenhouse gas methane with the German-French satellite MERLIN. This is made possible by a new robust laser system of the Fraunhofer Institute for Laser Technology ILT in Aachen, which achieves unprecedented measurement accuracy.
Methane is primarily the result of the decomposition of organic matter. The gas has a 25 times greater warming potential than carbon dioxide, but is not as...
Hydrogen is regarded as the energy source of the future: It is produced with solar power and can be used to generate heat and electricity in fuel cells. Empa researchers have now succeeded in decoding the movement of hydrogen ions in crystals – a key step towards more efficient energy conversion in the hydrogen industry of tomorrow.
As charge carriers, electrons and ions play the leading role in electrochemical energy storage devices and converters such as batteries and fuel cells. Proton...
Scientists from the Excellence Cluster Universe at the Ludwig-Maximilians-Universität Munich have establised "Cosmowebportal", a unique data centre for cosmological simulations located at the Leibniz Supercomputing Centre (LRZ) of the Bavarian Academy of Sciences. The complete results of a series of large hydrodynamical cosmological simulations are available, with data volumes typically exceeding several hundred terabytes. Scientists worldwide can interactively explore these complex simulations via a web interface and directly access the results.
With current telescopes, scientists can observe our Universe’s galaxies and galaxy clusters and their distribution along an invisible cosmic web. From the...
19.06.2017 | Event News
13.06.2017 | Event News
13.06.2017 | Event News
29.06.2017 | Physics and Astronomy
29.06.2017 | Life Sciences
29.06.2017 | Health and Medicine